Thursday, April 14, 2011

another symptom

Yeah my hearts breaking Mr. Man just can't catch a break. Yesterday woke up from his nap (3 hours) and he had tremors in his arms and legs bad. It was really bad he could barely feed himself (we do "snack" time after naps).. It lasted a good 20-30 minutes.. The Hubby thought it was cause he was cold but nope it was a tremor.. I showed his OT and then emailed the video to the geneticist.. and yeah tremors..

I keep making Odin promise me his heart is ok, but i'm scared it isn't.. I googled again (Ryane please come over here and smack me) and yeah never any "good news" ... ever..

I just want him to be normal and be able to enjoy life, being in the house all day every day isn't the best life.. But if i take him out he has so many bad days after it.. It just sucks.. I want some magic pill that will make him ok and able to be the amazing little guy i know he is. His mood is not good right now, he is so irritable which sucks. My happy little guy isn't here right now.. If we get a half hour of happy a day we are so lucky! I miss my little buddy who wasn't miserable most of everyday.

The 25th can not get here soon enough.. If it isn't his heart yay but boo cause something isn't going well..

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