testing

How do you know what tests are right? We have known Odin is "special" since he was 2 weeks old, we just had a feeling what he did wasn't normal. Never in a million years did we think we would have ended up where we did yesterday.

Let's rewind and tell you all that he has had done in his short 19 month life so far
1) countless ultrasounds (on bladder and kidneys and stomach)
2) 2 Upper GI x-rays
3) CT of brain
4) MRI of brain
5) EEG
6) Gastric Emptying Test
7) lab work up the wazoo
8) Basic x-rays (i think only 2 of these)
9) 2 endoscopies (2 upper and one lower)

Now back to the story.. Monday we went for the MRI and got some lab work done before hand just cause the docs love doing lab work (or so i thought).. Well the MRI was clear nothing wrong with his brain! WOOT WOOT! After getting home from the hospital we get a call from the doctors that his labs didn't come back normal again. Well then they go on and say we need to see Hematology and Oncology (it's a group in the hospital), but not to worry.. Yeah right why would they be sending you to a cancer specialist if it wasn't possibly that???? I worry a little but kept my brain at ease until the Hematology doctor started going over Odin's labs and then told me the next 3 tests we need to do.. Bone Scan , Bone Marrow Biopsy and Asparite , and a liver ultrasound... She never said what it was testing for but she didn't need to. I google enough to know those are testing for leukemia .. My heart is broken. But i didn't cry the entire visit (which for me is amazing).. I waited till i got into the car and broke down. I figure i deserve a cry for the info i was just given.. I honestly thought we would go to the appt and hear "oh their was a lab mix up so yeah i don't think there is anything here we can do for you"... But nope.. not what we got..

So now we wait to hear from MUSC on when our big day of testing is.. Then we have to wait a week after that to hear the results. I honestly say that will be far the worst week i will have this year. I thought waiting the 6 weeks for his DNA test to come back was bad, but this is worst.. There is no good out come from this i don't think. I am trying to stay positive but it's hard. I know things will be what they will be and me crying over it won't change it but right now i am heart broken Mr. Man will have to go through this stuff. This is his first truly invasive procedure yet.. And it will tell us if he has a blood cancer..

I hate that word.. Cancer.. It just sucks hearing!