We are going to be seeing Greenwood Genetics next week. I am so not ready for this. I have kinda shut down doctors, but Mr. Man's in a downfall again. He is too tired all the time to even do Physical Therapy. It's so frustrating. Greenwood wanted nothing to do with us 2 months ago but since the intubation now they see he has something wrong. It just sucks things have to get worse before they get better.
I need to refresh on dates of what and where everything happened. I just want Mr. Man to be a normal little guy. He looks so normal but spend a day with him you know he isn't. He tires out too easily and sleeps way to much. Do i think there is a diagnosis?? Nope i don't, i think he is unique and we won't ever get an answer. It hurts thinking that. I am not going to try to think that they will figure it out cause honestly i am tired of getting my hopes up. I'm just tired of thinking they have hope to figure it out. Not trusting the medical here it's hard to go see new doctors and try to get their input...
On a good note. Mr. Man gets to start Water therapy! So exciting it should help him so much! It won't be weekly but twice a month and then when the pool opens up here on base i can do it more on my own.
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