It's time to say "fuck you MUSC". We've come to the point of hating them and no trust is left. They have emotionally drained us and caused physical damage to Odin. They intubated him and his voice has changed. In theory it will fully return but it isn't the same. This should never have happened. They were in the wrong and there for i will never set foot in there with Odin for another "follow up". Nope we are done! We know something is still off, but if we can't trust the doctors it is pointless to continue the care. We will just continue to do his therapy until something comes up and then i will pull my tricare magic and go out of state to a real hospital that will help him.
It's been a long hard month for us. With his voice being gone for most of it. It has returned a bit but still raspy and not the "sweet" sound he had. He also is miserable all the time, he doesn't want strangers near him at all. He knows better now, and it is hard to deal with. He has anxiety a lot now. I know it isn't my fault but i do blame myself. It is my name who signed the authorization for the testing. It is me who allowed them to do it to him. I feel that it is the hospitals fault on why he is like this but i still have guilt.
So there you have it, i have "given" up on the medical care here in Charleston. Others may think it is a great place for medical but honestly if you have an "out of the box" problem you are screwed. Now my not even 2 year old has issues way to fuck up MUSC..
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