Wednesday, September 7, 2011

It must be nice

Ok so its hard to be a special needs mom with no special needs moms ass friends here (I have a ton online but its not the same). Some say "well iwould make them rush a test" or iwould fight harder if it was my kid.. Well geee thanks. I'm do glad you would do that but guess what I don't give a rats ass cause you have two healthy kids.. I mean it is easier to say I'd do this but when you don't know everything its easy to judge.

As a special needs mom we beat ourselves up a lot.when a procedure goes wrong you dwell in what you should have done. We understand how some tests take forever to fully run and aren't like a basic cbc that they can get results almost instantly. Its hard to hear what your kids can do ams then I realize my kids can't. A simple well baby check up for a normal kid isn't a big deal, but for a special needs kid it is not a cut and dry thing. You have to make sure you have the right copies of what all has been done cause believe it or not the kids pcm won't know what the hell the updates are before you tell them. Appt never go as easy.. If we walk out with only one test to do then you know its a good visit. Your kid cries over shots and mine aren't even passed by blood draws anymore.

I hate once I mention a medical terms people google.. And for some stupid reason they email the damn link.. Why would you do that.. Am I that stupid I don't know anything about my kids issue?

You worry if your kid will go to college or what they become and we worry if we will see our kids go to prom , get married, heck even make it to middle school.

I'm allowed to be angry to cry. What I've been dealt is not fun. I would love a very basic boring life with healthy kids.. But I get this amazing journey with my special needs kids. They teach me so much about life. We all should learn from them.
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